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Mr. Stunell: To ask the Secretary of State for Health what advice he has received on (a) the diagnosis, treatment and management of myasthenia gravis and (b) support for patients and carers; and if he will make a statement. 
The national service framework for long term conditions will focus on improving services for people with neurological conditions. While the framework will not cover myasthenia gravis specifically, it will recommend improvements in standards, care and support that will benefit everyone with a neurological condition.
It is for health authorities, in partnership with other local stakeholders to determine how best to use their funds to provide health services for their populations, including those with myasthenia gravis.
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|NHS administration costs (£ million)||NHS total expenditure England|
|Percentage of NHS administration costs as a proportion of total NHS expenditure|
Mr. Drew: To ask the Secretary of State for Health if he will make a statement on the functioning of the NHS Bursary Department (a) hotline, (b) e-mail system and (c) correspondence facility and how many letters of complaint he has received on this issue. 
Mr. Hutton [holding answer 1 November 2004]: The NHS Pensions Agency student grants unit deals with very high volumes of inquiries from students, universities and other organisations. The unit's work is seasonal by nature peaking from June to October. Throughout the majority of the year, the unit deals effectively with all customer inquiries but they acknowledge that during their busiest period many callers have had difficulty contacting them within a reasonable time.
Work is ongoing to improve the unit's customer service both in the short and long term. This includes extra helplines to deal specifically with clinical placement travel claims, disabled student allowances and the new child care allowance. In addition, a new website has been set up where a dedicated team will answer frequently asked questions.
Dr. Murrison: To ask the Secretary of State for Health what criteria are used to determine whether patients may (a) opt out of and (b) anonymise entries in the national programme for IT in the NHS. 
[holding answer 1 November 2004]: Good clinical management requires that healthcare professionals keep a record of key information about
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their patients and about individual treatment episodes. The national programme for information technology is incorporating stringent security controls and safeguards that will mean patients have more control over who has access to their information than is possible with existing systems. A fundamental principle in the implementation of the national health service care records service (NHS CRS) is that confidentiality and privacy of sensitive patient information must not be compromised.
Patients will have the right to specify that detailed information recorded at the point of contact with the NHS should not be available to other NHS organisations via the summary record held on their NHS care record. They will also have the right to define some information as especially sensitive and only accessible under terms of explicit consent. This reinforces the key statutory safeguards set out in the Data Protection Act 1998, with which all information users must comply. These facilities have been designed in to the NHS CRS.
The Data Protection Act also provides patients with a right, where they are suffering substantial damage or distress, to object to processing of their data, including to prevent their data being held at all in an identifiable form, though this is expected to be a very rare event. We are currently considering how this right should apply to implementation of the NHS care record.
Tom Cox: To ask the Secretary of State for Health what the average amount of NHS spending per head of population of people living in the Greater London area has been in each of the last three years. 
Ms Rosie Winterton: Details of the number of patients dying while registered for an organ transplant in the United Kingdom during each 12 month period since the start of the national health service organ donor register is shown in the table.
|As at October||Number who died while on list|
Mr. Salmond: To ask the Secretary of State for Health (1) what recent discussions his Department has had with the Scottish Executive regarding the over-30-months scheme; and if he will make a statement; 
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