Select Committee on Science and Technology Appendices to the Minutes of Evidence


Memorandum submitted by the Royal College of Pathologists

  The College represents Clinical Scientists involved in diagnostic genetic testing, both cytogenetics and molecular genetics. It is particularly concerned with issues of quality assurance and training. Expertise in genetics is provided by a Specialist Advisory Committee.

What effect could the use of test results by insurance companies have on research in the UK?

  We feel that publicity surrounding use of test results by insurers is likely to make some patients reluctant to participate in research, thus slowing down progress. However, protocols have been established to separate research findings from diagnostic tests and to preserve the anonymity of patients. These should be used in all laboratories. Adherence to such a protocol is not at present a standard for accreditation by CPA but could be usefully incorporated.

22 January 2001

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